Saturday, August 3, 2013

The Ice Queen

"Sarah Byrd, Riverside, California," said the card BYU had sent. Sarah, nice name. Riverside, nice town. Oh God, plesae let her be a nice girl. In three weeks she would be my roommate. I was nervously curious. Luckily, Sarah's phone number was included on the information sheet. I called immediately.

Mrs. Byrd answered the phone. I quickly told her who I was and asked to speak to Sarah. Mrs. Byrd enthusiastically introduced herself and began to detail Sarah's lineage. The Byrds, it would seem, were an important family in Southern California, very successful, spiritual, wealthy, and very well-known. For a half an hour, she recited the family résumé. Eventually, she sidetracked to the decor of our dorm room. Matching bedspreads, she thought, would be charming. Purple, that was Sarah's favorite color. On and on she babbled. I listened, amazed that anyone could talk so long. My brain calculated the cost of a daytime rate call. My mother would kill me. Our budget simply wouldn't cover the unexpected expense. 

After what seemed to be hundreds of costly minutes, Sarah got on the line. She sounded normal, a great relief. We chatted amiably, shallowly, for a few minutes. Then, out of necessity, I mentioned my budget situation to explain both the impossibility of buying matching bedspreads and the necessity of ending the conversation. She understood completely. She was thrilled I was from California. I was thrilled that she was thrilled. Our conversation lasted for about five minutes. I hung up delighted (despite the phone bill) to have met the girl who would soon become my friend, roommate, and confidante. 

The next time we spoke to each other was at BYU. I arrived after Sarah. Her belongs lay in neat piles on her bed. A dozen red roses sat on her desk. I dumped my things on the bed, the floor, and my desk and headed for freshman orientation. That evening I returned to find my room half immaculate. My side of the room sharply contrasted with Sarah's neat, organized side. Scenes from The Odd Couple flitted through my mind. I made a mental note to straighten things up as soon as I could.

Sarah matched her side of the room, very neat.  She looked like a Sourthern Californian. Her body was a curveless size five, her clothes neat, pressed, flattering, and very expensive. Her face was neither gorgeous nor plain, merely passably pretty. Her hair feathered back from her face in perfectly uniform sheets of layered, over-processed hair. 

We said our hellos, tacitly decided each other trustworthy, and began to share details of our high school love lives and tidbits of our family lives. The next day we ate all our meals together and went shopping. We could tell we were going to be the best of friends.

School started and our differences became apparent. She was a business major. I was a theatre major. Our schedules differed greatly. Rehearsals often kept me out past eleven while Sarah went to sleep at nine-thirty. Unfortunately she was a light sleeper; I always woke her up when I came in late. No matter how quiet I was, no matter how dark the room was, I was always greeted with a snip of a rude, sleepy remark. And since I interrupted her sleep every night, she mutilated mine every morning in retaliation.

At six every morning, she awoke, showered , and came back into the room to blow-dry her hair. The hair ritual lasted forty-five miutes. Then for twenty minutes she would stare into a lighted mirror applying layers of expensive cosmetics to transform herself into a moderately pretty girl. Overall, we shared more than an hour of loud, bright would-have-been sleep together every morning. 

During the days she made her displeasure clear chiefly through the skillful use of silence. She had perfected the art of icy stares in response to greetings, comments, or questions. The room began to develp a noticeable chill. My friends and I dubbed Sarah "The Ice Queen," and I began to spend the night elsewhere whenever possible. I would come home, change clothes, and leave as quickly as I could. 

One of the more noticeable results of this tendency to leave was the development of an enormous pile of dirty clothes on my bed and floor. Sarah broke the icy silence to complain about "the stench," with a meaningful look at the conspiciously piled clothes. I was offended. The stench, in fact, came not from my mess, but from the vase of rotting slime-water and the remains of her once-lovely roses sitting on her immaculate shelves. An arched brow and a silent removal of the offending flora was her only response to this discovery.

Shortly after the rose incident, a series of misunderstandings, which neither of us could have coherently related a week later, occurred. The situation exploded. Our silence was broken by a torrent of accusations. Through tears of anger and of frustration, Sarah told me of her dream roommate. She had wanted a Californian, a  real Californian. She wanted a friend who would shop with her, double-date with her, share expensive, size five clothes with her. Visions of summers of dashing back and forth between Sourthern Californian hometowns, hitting the beaches, and breaking hearts, clashed with the reality of a slovenly Northern Californian roommate. She wanted another roommate, another chance for fun that coming summer.

She demanded that I move. The phone was in her name: I was to move. My stubborn streak flared; I refused to move. Sarah's carefully lined eyes narrowed and she softly growled, "If you think I've been a bitch so far, just wait . . . I'm going to make your life a living hell." I did not care to take her up on the offer. She was more stubborn than I; I had no doubts of her abilities to carry out the threat. I was gone by that night.

Periodically, I saw her during the next few weeks. We passed by each other as if we had never met. She left in the middle of the semester. I did not miss her. Still, I think about her every now and then, and about how childish we were. And sometimes when someone is from Riverside, I'll even ask if she is familiar with the notorious Byrds. Amazingly enough, sometimes someone is.

—1992

{My oldest daughter has just gone off to Berkeley and I told her I'd post this twenty year old essay in honor of her own, much more pleasant, roommate experience. If I had been tempted to use Sarah's real name, the temptation was squashed by a Google search that revealed that she is unmarried, still living in Riverside, and a lawyer—part of a family with an infamous estate feud. Yeah, I think I'll pass on naming her. Twenty-eight years later, I still wouldn't want to cross her.}


Wednesday, July 3, 2013

Rules To Live By

Once upon a time, I read a little book of advice from a father to his son. It got me thinking about thinking about things I want to pass on to my kids. As my forty-sixth birthday is coming up, I thought I'd cough up forty-six pearls of wisdom for my posterity. Some clearly apply to my daughters more than my sons. Use your best judgement in applying these babies in your own life.

1. If you are already in the shower, shave and shampoo. You'll never be sorry you did.
2. Don't pull on loose strings.
3. Floss.
4. Do one generous and one ridiculous thing when you get a windfall.
5. Remember birth control doesn't work sometimes. Don't have sex with anyone you are unwilling to have a child with.
6. Date someone for at least a year before getting married.
7. Live in the worst house in a nice neighborhood. Make it better.
8. Never buy a refrigerator without shelves.
9. Always try to go to the funeral of someone you love.
10. Children are not grownups, but they are people, full-grown souls in little bodies. Be respectful.
11. Do not induce labor if you can help it.
12. Treat people as you would like to be treated.
13. If you think something nice about someone, say it to them.
14. Tell people you love them if you do.
15. Don't tell people you love them if you don't.
16. Bills don't go away if you ignore them.
17. If you need to throw up, just do it. Stressing about it and trying to stop it just results in constant nausea and puke coming out your nose.
18. Parents get grouchy and tired. Offer them some time off sometime if they seem to be losing it.
19. If you swear around little tiny people, you can expect them to parrot it back in their cute little lispy voice. Chances are this will not make you feel warm and fuzzy.
20. If you plant something, water it, or it will die.
21. If you plant something, don't water it too much, or it will die.
22. Don't name chickens you are planning on eating.
23. Anything is easier to wash right away. It gets harder the longer it sits. (Except oatmeal. Don't know what's up with that.)
24. Buy the best knives you can afford.
25. Don't cheat. It makes you feel bad and it gets you in trouble.
26. Don't hit people. Even when--especially when--it seems like a good idea.
27. If you are going to have more than one kid buy good quality clothes second-hand. For you and for them.
28. Nursing costs a heck of a lot less money than formula. Spend some of that saved money on yourself.
29. Read widely. Read about ideas, people that appall you as well as those that uplift you.
30. Most friends will grow distant eventually, even ones you think will always be there. In the end, your family is still there. Invest the most in those relationships.
31. Visit lonely people.
32. Never take sides in a divorce.
33. Do not argue with the police. Use your nice words.
35. Treat your mail carrier well.
36. Wash your can opener.
37. Never say "uh-huh" absentmindedly to a child. They will remember that "promise" forever.
38. If you get an epidural and then you get a horrid headache afterwards, they will suggest you wait two weeks for it to heal on its own. It will not. Just get the "blood patch" that they will offer you in two weeks right away. It's really low risk and it works instantly.
39. When someone talks about suicide take them seriously. So what if she is just seeking attention? Give it to her.
40. Do not love other people's children as if they were your own. Your heart will break if they leave.
41. Pray. No one loves you more than God. No one deserves your love more than God.
42. Lay down for a full week after you have a baby. Your body will make you pay if you try too much too soon.
43. Be careful with bleach. A little goes a long way.
44. Play the Glad Game.
45. Give people the benefit of the doubt.
46. If you lend money, consider it a gift. Do not borrow money from friends or family.


Friday, April 12, 2013

The Hard Part

Wise words from the Parents’ Tao Te Ching:

When your children behave,
give them respect and kindness.
When your children misbehave,
give them respect and kindness.

When they are hateful,
love them.
When they betray your trust,
trust them.

Believe this difficult truth:
Showing respect in the face of disrespect,
love in the face of hate,
trust is the face of betrayal,
and serenity in the face of turmoil,
will teach your children more
than all the moral lectures
by all the preachers
since the dawn of time.

Source: "On Soft Discipline": http://www.positivelypositive.com/2013/04/08/on-soft-discipline/

Wednesday, April 3, 2013

Neighborhood Blessings

As I think I may have mentioned, my kids lost both their grandmothers in 2011. It's been a bit rough on them. We prayed for the blow to be softened, and the Lord answered our prayers. About two years ago a very friendly person moved in down the street, a grandma who had no grandbabies to love. My kids adopted her. She adopted them.

Not that long ago, V wanted to go down to June's* house. I reminded her that it was a school day and V begged to be able to go read out loud to June, a thing she detests doing for me. "It makes her happy, Mom!" So I gave permission and V ran down. A couple of hours later I got a call from June telling me how she had gotten up that morning and wondered why she even bothered getting up every day. And then V came down and read to her. And it gave June such joy.

My kids still are a bit death obsessed. C told June that she loved her so much she would go to her funeral. June laughed, hugged her, and told her that she loved her too. V has told her how much she's going to miss her when she dies. L (my money-obsessed rude monkey) suggested that he'd be happy to have some of her money when she goes. (They have a long-standing joke where he teases "Give me all your money," and she laughs and swats him.) June lost her husband a few years ago and just lost her mom last month. She understands. She responds with love.

June comes by for holidays and birthdays. She made all of her kid friends in the neighborhood a fleece blanket for Christmas. She took the kids shopping to pick out the fabric and then had them help her. (They all wore them as capes on Christmas day as they visited around the neighborhood, even the big tough kids.) She gives them a piece of candy from her candy bowl each time they visit. (One piece, don't even try to take an extra!) She has them weed for her. She chews them out if they sass her, use bad language, or treat each other poorly. She takes them to the ballet, takes them grocery shopping with her, and just spices up their lives in general. Like a grandma.

We needed a grandma and the Lord gave us June who as it turns out needed us too, and strangers turned into family. It's a tender mercy that boarders on miraculous to me that the Lord chose to bless all of us in the same move.


*Name has been changed to protect her privacy.

Tuesday, April 2, 2013

Moffat's More Death Obsessed than I Am.

If I haven't outed myself as a nerd yet, allow me to do so. I am a Doctor Who fan. A big one. I have no TARDIS mugs or sonic screwdiver pens. No posters all over my rooms. Nevertheless.

Anyhow, I'll post a huge picture for those of you who need protection from Season 5, 6, and 7 spoilers. Here you go. Now go away or your life will be spoiled. (Also—move it along, time to catch up on your Who.)


Steven Moffet is just messing with us all. As I'm sure most people who've watched New Who can tell you, Moffet is mean and more than a teensy bit morbid. People die and then live. Then die again. (Lather-rinse-repeat.) Rory-and-Amy's deaths have became a running joke. Apparently Clara is going to follow suit. So here is a post that is really just for me to keep score. I'll be adding to it. [Don't flip out if it takes me a bit. "Just for me" means I am not trying to write the authoritative death lists for Whovians. Also I am not touching the Jack Harkness deaths, too many, too grotesque.]

Rory's Deaths:
1. Amy's Choice—Mrs. Pogett
2. Amy's Choice—Blown up when the doctor blew up the TARDIS.
3. Cold Blood—Shot by the Silerian Restac (intended for the Doctor) and body absorbed by the light, erased from time.
4, The Curse of the Black Spot—A toss up between drowning, and being vaporized by the touch of a stroppy homicidal mermaid, one of the two got him.
5. The Curse of the Black Spot—Appears to drown when taken off life support.
6. The Doctor's Wife—Died of old age in the TARDIS, driven to insanity by House.
7. The Angels Take Manhattan—Died from old age at Winter Quay.
8. The Angels Take Manhattan—Jumped from roof of Winter Quay.
9. The Angels Take Manhattan—Lived to death in the past, died for real at age 82. (This time they really mean it. Ten points if you can guess the show that's from.)

Amy's Deaths:
1. Amy's Choice—Drove van into wall.
2. Amy's Choice—Doctor blew up the TARDIS.
3. Hungry Earth—Amy appears to die when she gets swallowed up by the earth.
4. Girl Who Waited—Older Amy killed by the kindness of hand-bots and simultaneously wiped from existence. 
5. The Angels Take Manhattan—Jumped from roof at Winter Quay.
6. The Angels Take Manhattan—Lived to death in the past, died for real at age 87.

Clara's Deaths:
1. Asylum of the Daleks—Blown up.
2. The Snowmen—Fell to death.
3. The Bells of St. John—Soul sucked out by a little girl spoon-head at the base of the stairs.
4. The Bells of St. John—Soul sucked out by a doctor spoon-head at the café.
5. Journey to the Centre of the TARDIS—Melted into a lava monster thingy. (I believe they are known in certain circles as "ossified creatures.")
6. The Name of the Doctor—OK, Clara officially wins most deaths of anyone in Who, old or new. How can you even count after that? 

If, by chance, you are not a Doctor Who fan, I suggest that you try it out. Get ready for cheesy special effects, some over-the-top moralizing, some melodrama, and some good clean fun. In theory, it's a children's show, but it's too scary for my littlest who is six.

As an aside, I must admit that I had a very good time double checking my list.

Sunday, February 17, 2013

For My Daughter

By Sarah McMane
“Never grow a wishbone, daughter, where your backbone ought to be.” – Clementine Paddleford

Never play the princess when you can
be the queen:
rule the kingdom, swing a scepter,
wear a crown of gold.
Don’t dance in glass slippers,
crystal carving up your toes --
be a barefoot Amazon instead,
for those shoes will surely shatter on your feet.

Never wear only pink
when you can strut in crimson red,
sweat in heather grey, and
shimmer in sky blue,
claim the golden sun upon your hair.
Colors are for everyone,
boys and girls, men and women --
be a verdant garden, the landscape of Versailles,
not a pale primrose blindly pushed aside.

Chase green dragons and one-eyed zombies,
fierce and fiery toothy monsters,
not merely lazy butterflies,
sweet and slow on summer days.
For you can tame the most brutish beasts
with your wily wits and charm,
and lizard scales feel just as smooth
as gossamer insect wings.

Tramp muddy through the house in
a purple tutu and cowboy boots.
Have a tea party in your overalls.
Build a fort of birch branches,
a zoo of Legos, a rocketship of
Queen Anne chairs and coverlets,
first stop on the moon.

Dream of dinosaurs and baby dolls,
bold brontosaurus and bookish Belle,
not Barbie on the runway or
Disney damsels in distress --
you are much too strong to play
the simpering waif.

Don a baseball cap, dance with Daddy,
paint your toenails, climb a cottonwood.
Learn to speak with both your mind and heart.
For the ground beneath will hold you, dear --
know that you are free.
And never grow a wishbone, daughter,
where your backbone ought to be.

[Thanks to A Mighty Girl for sharing this with me.]

Wednesday, November 21, 2012

The [Pie Crust] Recipe the World Has Been Waiting For

This is my pie crust recipe. It is easy and not persnickety at all. Unlike most "never fail" recipes this requires no ice water, vinegar, delicate fork tossing, or pixie dust. You can re-roll it. You can touch it a lot. You can stir it too much. It still turns out well. The only note I have is don't get creative with the mixing method as that's where the magic lies.

 Never Fail Pie Crust

2 1/2 cups flour
1 teaspoon salt
4 pinches baking powder (not soda)
1/2 cup water
1 cup shortening

Mix flour, salt and baking powder. Remove 1/2 cup of flour mixture and mix with water [makes a paste]. Set aside. Cut in shortening to flour mixture.* Pour on paste. Stir until blended. Roll out on floured board. Bake single shells in 400 degree oven 11 minutes.

Yield: 2 good sized pie crusts.

Original source: Janet Chance in The Pedalin' Gormet, a ward cookbook

* Personally I use a pastry blender I bought ages ago to cut in the shortening. I recommend buying one if you make pie crust or biscuits very often, but here's how to cut shortening in with two knives.

Exhibit A, a pastry blender:

Saturday, September 15, 2012

What We Take With Us

My mother used to say that every time she saw chickens she thought of me. As an afterthought, she would add how much she hated chickens. This didn't happen once. It happened repeatedly. "Every time I see chickens, it just makes me think of you. Ug, I hate chickens!" It made me laugh every single time. One time I repeated it to her verbatim. A horrified look crossed her face as the she heard those two ideas side-by-side for the first time. "I suck. I am so sorry!" I laughed and explained that I understood. I loved my chickens. She saw chickens and thought of my love for chickens, then the thought of how much she hated chickens. A perfectly logical thought progression.

Recently, I've been thinking of my mom every time I see oleander. I loathe oleander. It's pokey and huge and poisonous. Terrible to try to eradicate. But my mom loved it because her mom loved it. It thrives in drought, a bright spot the drab brown of our Northern Californian summers. But man, I hate that stuff.

At the beginning of August, my yvil sister and I buried my mother's ashes. Y had collected a batch of little trinkets to bury with her, the dogs' name tags, little charms with all of our birthstones, a rainbow girls thing-a-ma-bobber, and a Starbucks latte, prepared just the way my mom liked. I brought nothing.

She placed the plastic box of ashes in the hole and scattered her meaningful trinkets over and around the box, and wedged the latte in there. I went to the edge of the cemetery, picked some oleander blossoms, and placed them on top of the other things. They were lovely: poisonous, pokey and lovely.

They reminded me of my mom, of my relationship with my mom. Are there two different ways of looking at something? We'd take opposite stances. Sometimes that could get a little impassioned, hating something the other person loved. But always we loved each other, even when we were so angry (or hurt) we could hardly speak to each other.

When we had only days left, did we talk oleander or chickens? No. At the beginning of the end, when her capacity for speech was really winding down, she had one thing to tell meI love you. When she was signing Christmas cards, she could hardly write her name, but she wrote IloveyouIloveyouIloveyou all joined together. She loved me. She hated chickens, homeschooling, attachment parenting, home birth, and the Mormon church, but she loved me. In the end, that love was all that mattered.

Friday, September 14, 2012

What We Bring With Us

Yesterday, Jacob's math teacher called home. I was rather surprised that anything Jacob did would warrant a call home. He's kind of perfect at school. In fact, that is what the call was about. A kind teacher called to tell me that my son was acing his AP Calculus assignments, that he was well-behaved, and insightful, an asset to the class. Needless to say, I love hearing that. I should probably write her a thank you note. 

There is nothing in Jacob's genetic make-up that would give him a natural edge in math. Certainly, his elementary teacher was only middling in math and not enamored of it. (In fact, my limitations as a math teacher are why Jacob chose to attend public school as a sophomore. "Math books and CDs only explain it one way, Mom.") Neither nurture nor nature should have produced my math boy, but Jacob has excelled from the very beginning. He has both love and aptitude for the subject. This talent as much as anything else convinces me that children developed as individuals with their Father in Heaven prior to their birth.

It's interesting to see how the attributes that my children showed so early on are developing. Elaine was an observant baby. She watched people, listened to them, absorbed. Now she is one of the most insightful people I know. She notices nuances in people's words and body language. She finds people fascinating. I always ask her to tone-check sensitive emails (things that might easily blow up) before I send them off. Invariably, she catches subtext. Not surprisingly, psychology is the field that fascinates her. Gifts. 

My husband is a talented musician. From the time he was a wee child he knew he wanted to play the trumpet. Nothing in his family would have taken him that direction. It just was part of him. His family thought he was just being a kid and it would pass. When he was five, they gave him a toy trumpet which was greeted with joy, quickly followed by disgust as he realized that it was a fake. Seven years later his parents got him the real thing and a teacher, a great teacher. Music still feeds his soul.

I myself was a born reader. My mom tells the story of finding me teaching the neighborhood kids to read when I was four. No one taught me to read. I had "Sesame Street," "The Electric Company," and a gift from God. My Natalie similarly began to read early with very little instruction. Just a gift and a passion.

I love this stanza from Wordsworth's Ode: Intimations of Immortality from Recollections of Early Childhood.

 Our birth is but a sleep and a forgetting:
          The Soul that rises with us, our life's Star,
              Hath had elsewhere its setting,
                And cometh from afar:
              Not in entire forgetfulness,
              And not in utter nakedness,
          But trailing clouds of glory do we come
              From God, who is our home:

At one point, I believed I would shape my children to be what they ought to be. Now, I know better. Yes, I do influence them, but they are vehemently their very own selves, formed before they gained physical bodies. I'm blessed to be able to watch them blossom into those selves.

Saturday, September 1, 2012

In Which I Attempt to Convince Myself of a Truth

Yesterday, I was feeling yucky. I looked up at my daughter and said, "I don't know what's wrong with me. I just feel so bad."

"You're kidding, right?"

"No, what happened? Oh . . . right."

Then I remembered what I'd been distracting myself from all week. Something yucky had happened, something that blew me out of the water, something I didn't want to deal with. And I buried it. Under distractions: being busy, being mom, watching SciFi, reading everything I could get my hands on. It worked, I forgot the problem. I was sort of dazed this week, unable to concentrate, and whenever I got a minute and my mind began to focus on the issue, I shoved myself head-first into something that would make my thoughts SHUT UP.

Distraction worked and it didn't work. The pain was still there. My subconscious was picking at the scab. I had symbolic nasty nightmares all week. I still felt like crap; I just wasn't as sure why.

I know I need to write. Some people need to run. Or to paint. Or to dismantle a car engine and put it back together. I need to write. Writing is the way my brain processes yuck, takes my issues, those chaotic feelings, and forms them into sense. Then my psyche lets the problem go. When my thoughts threaten to drown me, if I write them out then I clarify those thoughts, work through them. I have a journal entry or a bad poem or blog post instead of free-floating anxiety. Seems like a fine idea.

But I've been avoiding writing. Because the clarity hurts. Writing hurts. But after I write, the things stop killing me. My subconscious lets them go. When I wrote about my mom's death I sobbed through the process. I sobbed as I read the post twenty times, then I moved on. The nightmares stopped. I could think about what happened in passing without being thrown back into the situation. There's hundreds of instances on my blog, in my journals, in my correspondence of times when this process has happened.

With distraction, I feel better in the short run. With writing, I feel better in the long run.  Like exercise and good nutrition, like getting enough rest, like the golden rule, like reading the scriptures daily, the easy way is the wrong way. And not easier. Truly. 

Monday, April 23, 2012

Wonder What Brought That To Mind

Elaine and I were walking tonight, chatting away, when she mentioned that she didn't like the creepy aspects of Dr. Who. Perfectly normal things suddenly were creeping her out. Things like statues. And shadows. We both glanced back at the driveway we had just passed. And saw. . .

No sign of the Doctor though.

Tuesday, January 17, 2012

Twenty Years Ago


January 17, 1992
Jami and Sam were married in the Oakland temple.

It's been a very eventful twenty years. If I'd been married in a standard wedding ceremony, I would have vowed to have and to hold my sweetheart "for better, for worse, for richer, for poorer, in sickness and in health, to love and to cherish, till death us do part." We've had better, worse, richer, poorer, sickness and health. We do love and cherish each other, but I am glad that all that work we've put in through the worst, the poverty and the sickness is going to pay off a little longer than until death. (Let's face it the better, richer, healthier times are their own reward.) Our vows are for eternity and distinctly include a third party, our Father in Heaven. Without him, we doubtless would have quit. With him, we have a relationship worth having for eternity.

I don't remember much of the ad lib part of my wedding ceremony, where the man sealing our marriage for time and all eternity gives his thoughts and advice on marriage, but I remember one thing vividly: his testimony of the importance of the atonement of Jesus Christ, of repentance, and of the need to forgive each other as God forgives us. I remember how intensely I felt the Holy Spirit confirm the truth of those words. As I've thought about what to say about a marriage that has weathered the stormy seas, I just want to say to those on those seas that there is joy and sun ahead through the atonement. Truly, God heals. "Whatever Jesus lays his hands upon lives. If Jesus lays his hands upon a marriage, it lives. If he is allowed to lay his hands on the family, it lives."

Don't get me wrong. I love my husband. I enjoy having and holding him. His quirky sense of humor makes me smile. His humility inspires me. His voice melts me. Tonight we are going to ditch our six kids and go do something fun. Even so, our anniversary is a day, just one out of 7,304 so far. I look forward to many more and to an eternity beyond our years.

Monday, January 2, 2012

The Truth Ain't Always Comforting

My mom died early in the morning on December 21st. Everybody wants to die peacefully in their sleep. Everyone wants to hear that someone they love died easily. I've been lying pretty steadily to my mother's friends and relatives. If you want that, stop reading now. Read my lie and stop: Yes, it was easy and peaceful. I miss her very much.



The truth is: My mother's death was the most horrific thing I have ever witnessed.  I have never seen suffering that intense (and I've been a part of 11 drug-free births). Listening to her take her last couple of breaths may well have been the most beautiful sound I've ever heard. I miss her immensely, but no one in their right mind would wish even one more second of life upon my mother.

Her pain control had never been great. On average, I'd say the last two weeks of her life were spent at an 8 on that infernal pain scale. (See here and here for irreverent explanations of the pain scale. Language warning on the second link.) The hospice team took us slowly through a gamut of meds. We started with Norco (a codeine and acetaminophen mix), moved to long-acting morphine pills, then to liquid morphine, Fentanyl patches and finally a Dilaudid IV pump. Each time Vlas, the hospice nurse, visited he would call the doctor and increase the meds. (He advocated for my mom compassionately and aggressively. God bless him.) And none of it worked until we got to the Dilaudid pump. It, combined with six Fentanyl patches, knocked her out and allowed her to rest peacefully. We had the pump for two days.

They give you a booklet that explains the signs of death. Several books actually. And the yvil sister and I read them and read them. A week prior to her death my mother was doing everything that indicated that she could die any minute. (Except the mottling of hands and feet—that woman died with pretty pink hands and feet.) The waiting was excruciating. (I am not a good wait-er under the best of circumstances.) The hardest was the death rattle that went on for days. She would stop breathing for 15-20 seconds several times an hour. I found myself holding my breath with her, hoping there would be no more. Hoping she'd die peacefully in her sleep.

At about 2 am, the death rattle changed. I could tell death was near. I prayed my sister would be able to sleep through it. Not likely. Mom began moaning, and that moan turned into a noise that was as loud as a scream, but not as shrill. After about forty minutes, Y came in.

The Dilaudid pump allowed four extra doses an hour at the press of a button. I have never been so precise before in my life. Fifteen minutes, press. Fifteen minutes, press. I slapped our last Fentanyl patch on her (for a grand total of  seven 100 µg per hour patches).

My mom had bought a book, years ago, about how to kill yourself in a dignified manner in the event of an incurable disease. She'd had me read it and asked if I would be very angry if she chose that route. She never got to that point while she was lucid. (Very disturbing, that book.) I pulled that out now. Not to kill her. (I'd already had to reassure Y that Mom would never have wanted her to go to jail for any reason, ever. Even though she'd said "kill me" days before.) I pulled the book out to figure out how much liquid morphine is lethal, so that I could give her as much as I could without actually hastening her death. I quickly determined that liquid morphine was hard to get to a lethal dosage once you've been taking it for a while and that the lethal dosage was quite high, well beyond any amount we could get into her. I began giving the dose that had been prescribed for breakthrough pain, slowly because she couldn't swallow and it had to be absorbed under her tongue. All the while: fifteen minutes, press; fifteen minutes, press; fifteen minutes, press.

Three and a half hours later, the moaning/screaming/death rattling subsided into mere moaning/death rattling. A half an hour after that it stopped altogether.

When she came to confirm death, the hospice nurse asked why we hadn't called for help. They could have increase the dosage of Dilaudid the pump was giving her. In hindsight, we'd had time, but at the time we didn't know.We thought we were minutes away. Additionally, the night hospice team sucked. And the night dispatch nurse sucked even more. (Had a couple of prior attempts at nighttime advice to confirm that one.) It would be an hour before they could get there. And the pump took more than an hour to set up originally. Additionally, we were too busy giving her the pain meds we had and holding her hand.

I felt betrayed by the hospice literature. By all the people who had had sweet peaceful deaths. By everyone who had ever touched my mother medically. I'd never heard of anything like this. I felt like my sister and I were dumped into the middle of a complicated surgery, handed a bunch of scalpels and sutures and told to figure it out. I still am in shock. It's been two weeks and I am still in shock. My mother-in-law hadn't died like that. My aunt hadn't. My uncle hadn't. They all died of similar diseases. If I had some sort of way to forget, I'd take it. But I don't. I get to be sucked back into the memory at random moments. To dream about it.

Finally, I just decided to write it. To get it the heck out of my head.  To save innocent bystanders who are politely wondering how I am doing. (The answer to that is just fine, most of the time.) To provide a cautionary tale to others. (Ponder long and hard about dying away from medical personnel. Weigh the risks of heinous medical interventions against the risks of dying with a sudden increase in the need for pain meds with all help at least an hour away.)

Don't worry about me. I have an amazing group of friends who have been there for me this whole journey. I will heal. I don't know how many times I will have to tell this story before it loses it's power, but I know that it will. Eventually it will become a memory, instead of a reality. Thank you to those of you who made it this far—thank you for holding my virtual hand while I've told my story.



Sunday, December 11, 2011

The Latest CaringBridge Post

I'm not entirely sure how this next while is going to go, but I think the end is very near. I'm just re-posting the post I wrote for my mom's friends at CaringBridge. Not sure if I'm going to feel like posting like crazy or if my words will be trapped in my head. At least you'll know why.

Hospice 
Last month, Mom decided to discontinue chemotherapy and has opted to receive hospice care. Our first meeting took place two weeks ago. Since then we've had a wonderful nurse, Vlas, who has been visiting mom at home and taking care of all of her comfort needs.  
We're not sure how much longer we'll have with mom. For the last couple of days, she's not been eating or drinking much, which is a difficult transition for all of us. Vlas--and a bunch of other sources--have assured us that the curbing of her thirst and appetite are perfectly normal end of life developments. She's sleeping a lot too, which is also to be expected. 
Pain control has been an issue. They've adjusted the medications several times and seem to be coming to a reasonable level of control. As you pray for us, please pray that she can be comfortable for her remaining time, whether that time is measured in weeks or months. We have felt the power of your prayers many times in this journey, and I know the Lord will answer our earnest prayers. 
Thank you so much for all of your love, support and prayers. 

Jami

Saturday, December 3, 2011

Apropos of Nothing

Many of you know that I am a convert to the Church of Jesus Christ of Latter-day Saints and you may have wondered how the daughter of a Southern-Baptist-turned-nudist-hippy mother learn about a belief system that is so hated by both of the worldviews from whence she came. Saturday morning cartoons, of course.

One morning, little 5-year-old me was watching a teeny tiny black and white TV. A tiny cartoon Donny Osmond sang "Puppy Love," and I fell. Hard. In love with a cartoon boy. Not too long after that I saw the commercial for Donny Osmond's greatest hits and began the beg-a-thon. A successful beg-a-thon. I had the album in my possession at the next gift-giving occasion.

He sang songs about little girls with blue eyes who are much too young to know about love. I wanted to marry him. But he was SO OLD! Would he wait for me to grow up?

For five years, I hoped. Then one day my mom burst my bubble.

"He's Mormon. Mormons only marry Mormons."

"What?"

 "Mormons. It's a religion. Like Catholics or Jews. They only marry people who are in their religion."

 "How do I become Mormon? What do they believe?"

"You have to be born a Mormon. I know they aren't allowed to go sleeveless. All their shirts have to have some kind of sleeves."

I cried. A ten year old kid crying because Donny not only was ten years older than she was, but also would never marry her because she was (by this point) Presbyterian. Honestly, my little heart hurt SO much. I can still feel the memory ache today.

Three years later, I'd mostly overcome my puppy love, and one of my mother's facts on Mormons turned out to be false. You don't have to be born a Mormon. My step-mother joined the Mormon church and when I came to visit that summer, asked me if I wanted to meet with the sister missionaries. (Nuns? Mormons have nuns?) Sure. I guess.

Any guesses what my first question was? Yep. Why do Mormons have to wear sleeves? My second was related: What about Marie? She went sleeveless all the time! So my very first piece of legitimate information about the church was about temple garments as explained by two LDS sister missionaries to a bra-less 13-year-old in a tank top. (I'd gotten to the hippy part of my existence.)

Eventually, I joined the church, but the journey was quite rough, worthy of its own blog post (or two).

This story came up the other day, and I turned to You Tube to illustrate.

"Is that Justin Bieber?!" asked V, my besotted 9-year-old.

"No, but now that you mention it. . ."